The National Leadership Consortium on Developmental Disabilities Staff and Faculty
The National Leadership Consortium Staff
Steven M. Eidelman, MBA, MSW Steven Eidelman is the University of Delaware's H. Rodney Sharp Professor of Human Services Policy and Leadership. He holds joint faculty appointments in the School of Urban Affairs and Public Policy and the Department of Individual and Family Studies. Mr. Eidelman is the former Executive Director of the Joseph P. Kennedy Jr. Foundation, leading the organization to implement innovative projects, programs and cutting-edge policies. Prior to his appointment with the University of Delaware, Mr. Eidelman was the Executive Director of The Arc of the United States, an advocacy group for people with cognitive disabilities and their families, which has more than 900 state and local chapters and 100,000 members. Mr. Eidelman also served as Deputy Secretary for Pennsylvania's developmental disability service systems in the Department of Public Welfare. (Contact Steve Eidelman at firstname.lastname@example.org)
Nancy R. Weiss, MSW is a member of the faculty of the Department of Human Development and Family Studies at the University of Delaware and the Director of the National Leadership Consortium on Developmental Disabilities at the University of Delaware. The National Leadership Consortium is a partnership of eleven national organizations focused on assuring the quality and commitment of the next generation of leaders for government and nonprofit organizations serving people with developmental disabilities. Ms. Weiss has more than 35 years' experience in the field of intellectual and developmental disabilities. She was the former Executive Director of TASH, an international advocacy association committed to full inclusion for people with disabilities. Ms. Weiss has been an adjunct faculty member at Johns Hopkins University and the Director of the Department for Community Services at the Kennedy Krieger Institute in Baltimore. She also served as the Executive Director of Community Systems, Inc. an agency providing progressive supports for adults with developmental disabilities across Delaware. Ms. Weiss has worked extensively providing supported living services as well as positive behavioral supports. The consistent theme of Ms. Weiss's work has been the promotion of disability supports and policies that assure communities, schools, and workplaces that include, value, engage and challenge people with disabilities and that guarantee individuals with disabilities access to the full range of opportunities available to all citizens. (Contact Nancy Weiss at email@example.com)
Caitlin Bailey, Ph.D. ABD is the Director of Research and Evaluation at the National Leadership Consortium on Developmental Disabilities (NLCDD) in the Department of Human Development and Family Studies (HDFS) at the University of Delaware. Ms. Bailey oversees all research conducted within and in partnership with the Leadership Consortium and is the lead staff person for strategic growth and development of NLCDD. Since 2010, Ms. Bailey has worked with NLCDD to develop their ongoing longitudinal research project to evaluate NLCDD programs and research the development of leadership across the disabilities field of services, supports and policies. (Contact Caitlin Bailey at firstname.lastname@example.org)
Kristen Loomis is the Program Coordinator for the National Leadership Consortium on Developmental Disabilities. Her work focuses on developing and coordinating training and technical assistance for leaders across the intellectual and developmental disabilities field. The National Leadership Consortium recognizes that many of today's leaders entered the field with a passion for social justice; yet they require training and guidance to develop the skills needed to transform and lead services and systems that ensure quality lives for all adults with intellectual and developmental disabilities. Kristen oversees the planning of NLCDD programs and training, including the Consortium's Leadership Institutes. To date, the Consortium has held 30 of these Institutes since its formation in 2006. Kristen received her Bachelor of Science degree in Human Services from the University of Delaware and is currently working towards her Master's in Business Administration. (Contact Kristen Loomis at email@example.com)
The faculty of The National Leadership Consortium’s Leadership Institutes includes nationally-known experts in disability services and public policy. They include:
- Julie Bershadsky, Ph.D. is a research associate at HSRI. She is the primary researcher and data analyst for the National Core Indicators (an effort to develop indicators and benchmarks of performance across 30 states developmental disabilities service systems) and related projects. She is also the Project Director of the new National Core Indicators for Aging and Disabilities (NCI-AD) project. She has worked extensively with the NCI data, manages the multi-state dataset, and advises on all methodological issues related to data collection and analysis. In addition to overseeing the analysis of NCI data for national and state-level reports, Dr. Bershadsky has worked collaboratively with partners at the University of Minnesota and NASDDDS to design research questions, conduct analyses, and write articles for publication in peer-reviewed journals. Julie is a graduate of the 2010 Summer Leadership Institute at the University of Delaware.
- Annette Downey, has 21 years of experience working with both children and adults with developmental disabilities. She is dedicated to increasing the demand for Self-Determination as a means of supporting ALL people with disabilities. She is frequently an invited speaker at conferences throughout the state of Michigan and nationally on topics including Person-Centered Planning, Self-Determination, Income Generation for All, and Community First service provision. Annette is a tireless advocate for systems change aimed at promoting people with disabilities' right to choose their own life paths and to control who, what, when, where, and how their supports are provided.
Annette is a trainer and consultant for the National Center for Self-Determination, and is also the Executive Director of Community Living Services of Oakland County, in Southeast Michigan. Annette is a graduate of the 2009 Summer Leadership Institute at the University of Delaware.
- Derrick F. Dufresne, is the President of CRA Consulting, Inc. (formerly Resource Associates, Inc.). Over the course of his career, he has delivered conference presentations, training, strategic board planning retreats, workshops, and management consultation to over forty thousand people in forty-nine states regarding issues related to people with disabilities. Since entering the field in 1974, Derrick’s dedication to the community has evolved from serving as a unit manager in an institutional setting to running a non-profit that provided housing to individuals with disabilities in the community.
From 2003-2009, Derrick served as President/CEO of the Institute on Public Policy For People with Disabilities in Illinois. The Institute is a membership organization that focuses on promoting best practice and quality community supports for people with disabilities throughout Illinois.
Derrick works extensively in the closing of residential facilities, transforming systems that support individuals with disabilities to implement best practice, and establishing community wraparound services for individuals who are in crisis. He is also deeply involved in teaching and coaching how to pair person-centered planning with individual budgets as part of the implementation of self-determination in a Medicaid environment.
- Cathy Ficker Terrill's career has included working in government, non-profit organizations, university teaching, advocacy and supporting and mentoring self-advocates. Before joining CQL as President and CEO on January 1, 2013, Cathy was President and CEO of The Institute on Public Policy for People with Disabilities and prior to that President and CEO of the Ray Graham Association.
- Marian Frattarola-Saulino co-founded Values Into Action (VIA) with her partner Paul in 2005. She currently leads the organization in its support of people with disabilities in Pennsylvania and New Jersey. VIA is designed to enable self-direction within an agency context in partnership with people with disabilities, their families and communities. She has experience with developing and operating other models of service where people and their allies have control, such as support brokerage and micro boards. Marian is a graduate of the 2007 Winter Leadership Institute.
- James Gardner, Ph.D. is currently President of J Gardner & Associates, LLC, an international consulting firm focused on improving non-profit organizational performance. He is also a consultant to Raffa/Transition Guides, The Sarasota Community Foundation, a member of the National Advisory Board of the Community Integration Center at the Technical Assistance Collaborative (CICTAC), and Board member and Treasurer of Shared Support Maryland, Inc.. Jim previously served as President and CEO of CQL, The Council on Quality and Leadership from 1989 to 2012 where he shifted quality metrics from measuring compliance and organizational process to measuring quality of life outcomes as defined by each person receiving supports. During his career Jim has served as a unit director at the Fernald State School (MA), as the Executive Director of the Greater Lawrence Educational Collaborative (MA), as the Vice President at the Kennedy Institute at The Johns Hopkins Medical Institutes (MD) and as Director of the Education Center at the Sheppard Pratt Mental Health System (MD).
- Gail Godwin is the Executive Director of Shared Support Maryland, Inc. Gail's MA is from the University of Pittsburgh, School of Education, Program in Severe Disabilities - educational, employment and community inclusion. For over 20 years she has been an advocate in collaboration with people with disabilities and has worked in service provision organizations at a direct support staff, middle manager, and administrator and in training and development. Her current professional affiliations include Maryland Developmental Disabilities Council Executive Member (end June 2014) and MACS Board Member. Gail is a graduate and faculty member of the Leadership Institute Consortium on Developmental Disabilities. She is the co-founder of the New York Downstate Person Centered Consortium. Gail's experience is in Positive Supports, Person Directed Planning and Individualized Supports Organizational Development. Gail is a graduate of the 2009 Summer Leadership Institute at the University of Delaware.
- Joseph M. Macbeth is the Executive Director at the National Alliance for Direct Support Professionals (NADSP) and has worked in the field of intellectual and developmental disabilities for more than 30 years - beginning as a Direct Support Professional. Macbeth is recognized as a national leader in the advocacy and advancement the direct support profession and is a highly sought after speaker on the workforce crisis affecting human service provider organizations. He has co-authored the series of publications titled "Voices from the Frontlines", produced an award winning Realistic Job Preview titled "Working as a Direct Support Professional: We Get It Done", and has partnered with the State University of New York (SUNY) and assisted more than 500 direct support professionals advance their college education through the "Disability Studies Certificate". He currently sits on the board of directors for the Council on Quality and Leadership (CQL), the Elsevier's College of Direct Support and Relias Learning's National Advisory Boards and most recently was appointed by New York Governor Andrew Cuomo as a Member of the Advisory Council for the New York State Justice Center for the Protection of People with Special Needs. Macbeth is also involved with AIEJI, an international organization based in Denmark that promotes the work of social educators. He lives in Albany, NY.
- Diane McComb works with the Delmarva Foundation, a CMS Quality Improvement Organization, providing technical expertise on disabilities, self-direction, individual budgets, and community waiver programs. Concurrently, she also works with the American Network of Community Options and Resources (ANCOR) as the Liaison to State Associations around the country. Previously, she served as the Deputy Secretary of the MD Department of Disabilities; the CEO of a statewide association of community organizations that support people with disabilities and their families; and the director of a community agency that supported people with developmental disabilities and their families.
- Dr. Rick Rader is the Director of the Morton J. Kent Habilitation Center at Orange Grove in Chattanooga, Tenn, where he serves as a medical "futurist" in ascertaining the future medical problems of people with intellectual and developmental as they age. He is responsible for the creation, initiation and evaluation of innovative community based healthcare programs that address the complex needs of this vulnerable population. Dr. Rader is cross trained in internal medicine and medical anthropology and has a strong interest in the cultural determinants of health and disease models.
Dr. Rader is also the Editor in chief of Exceptional Parent Magazine and has contributed over 250 articles to the special needs literature. Under his tutelage the magazine has won numerous awards for excellence in healthcare journalism.
- Lynne Seagle, MPA is the Executive Director of Hope House Foundation in Norfolk, Virginia. Lynne began her career at Hope House Foundation in 1978 as the Director of Residential Services and has been the organization's Executive Director for more than three decades. Under Lynne's leadership, Hope House has become internationally known for its innovative, person-centered approach. Lynne is a member of the Arc of Virginia's Board of Directors and has served on the President's Commission on Intellectual Disabilities and is on the Advisory Board of the Joseph P. Kennedy Foundation. Lynne is one of the country's leading consultants on supported living services and organizational development, consulting widely throughout the U.S., the United Kingdom, Canada, and Asia. Lynne consults internationally on the topics of organizational and leadership development, strategic planning, and team building. Lynne is passionate about social justice and equality for all people, particularly those with intellectual or developmental disabilities.
- Chris Smith, PhD is the director of the Maryland Center for Developmental Disabilities (MCDD) at Kennedy Krieger Institute. He is an Assistant Professor in the Department of Population, Family and Reproductive Health, a Faculty in the Center for Women's and Children's Health Policy and Faculty at the Wendy Klag Center for Autism and Developmental Disabilities at the Johns Hopkins University Bloomberg School of Public Health. In addition, Dr. Smith is Director of Scientific Inquiry at the Center for Innovation and Leadership in Special Education at the Kennedy Krieger Institute. He has over 25 years of experience in the field of developmental disabilities, representing work with adults and children with various disabilities. Dr. Smith has served as an investigator for a number of technical assistance, training, evaluation, and continuous quality improvement projects including projects serving consumers with developmental disabilities, early childhood, community action programs, after-school programs and mental health programs. Dr. Smith has served as a consultant to schools on the implementation and evaluation of school-wide projects, and has published articles related to continuous systems-level assessment and evaluation. Dr. Smith is currently working at the MCDD in developing more integrated visions of self-advocacy training and leadership, assessment of the outcomes of self-advocacy training, improving family support efforts, and a more intensive effort to work with Centers for Independent Living to both capitalize on their infrastructure and to expand the reach of the MCDD in terms of service, research, and information dissemination.
- Michael Smull is the Chair of The Learning Community for Person Centered Practices (www.learningcommnity.us) and a partner in Support Development Associates (www.sdaus.com). Mr. Smull is the co-developer of a person centered thinking curricula and of essential lifestyle planning. He has worked in 47 states, and 6 countries outside the US. He has helped found 3 community agencies, assisted existing agencies to convert from programs to supports, and assisted states, regions, and counties to change their structures to support self-determination. Mr. Smull has written extensively on issues relating to supporting people with challenging behaviors, person centered thinking and planning, and the challenge of changing to a person centered system.
- Nancy Thaler is the Executive Director of the National Association of State Directors of Developmental Disabilities Services (NASDDDS) which serves 50 states and the District of Columbia, keeping state leaders informed about federal policy, representing states' issues to federal agencies, and providing information and technical assistance to state administrators on promising practices. Ms. Thaler began her working in nonprofit agencies developing community services for children and adults with developmental disabilities. Ms. Thaler served as the Director of Pennsylvania's developmental disability service systems and worked for U.S. Department of Health and Human Services' Center for Medicare and Medicaid Services (CMS) as the Director of Quality Improvement for Medicaid Home and Community-Based Services Waiver programs. Ms. Thaler and her husband are the parents of an adult son with intellectual disabilities.
- Elizabeth Vasquez is a Partner of Management Consulting Associates. She has over 30 years of experience as a management consultant for not-for-profit organizations, government agencies, and for-profit companies in the United States as well as internationally. She specializes in organizational development; typical projects involve her in strategic planning, partnership development, stakeholder involvement, culture change, leadership development, organizational problem solving, training, or program evaluation. In the field of services and supports to people with disabilities, she has consulted with many companies and nonprofit and government agencies including The Leadership Institute, University of Delaware Department of Disabilities Studies, Main Street Housing, The Council on Quality and Leadership, Crystal Run Village, Inc., The US Department of Education, The American Association of Intellectual and Developmental Disabilities and others.
- Jeanine Zlockie has more than 18 years of experience working in the field of developmental disabilities (DD). She started her career as a waiver supports coordinator which provided her with valuable experiences and connections that laid the groundwork for a strong foundation and understanding of DD systems. Jeanine uses her background in Medicaid policy and system's transformation to shape NASDDDS communication strategy to ensure it meets the needs of NASDDDS members. She is also the writer and editor of both State News Briefs and the Community Services Reporter publications. Jeanine also serves as Faculty for the National Leadership Institute on Developmental Disabilities at the University of Delaware.
Prior to joining NASDDDS, Jeanine managed the Pennsylvania office of developmental programs policy office. In this capacity, she was responsible for the development of Medicaid waiver applications, policy bulletins, regulations, legislative bill analysis, and training curriculum that impacted the Pennsylvania Office of Developmental Program's two 1915(c) Medicaid waivers. She was the primary contact to negotiate and resolve issues with the Centers for Medicare and Medicaid Services (CMS) and to provide waiver policy technical assistance to staff from Pennsylvania's four regional offices. Highlights of her work include co-authoring the Office of Developmental Program's home and community-based services regulations and managing the daily operations of the initial Home and Community Services Information System (HCSIS) help desk during the initial implementation phase.