NLCDD Sample Schedule
 

 

Leadership Institute Session Descriptions
Note: These are a sample of the kinds of sessions that may be presented. Sessions and facultychange slightly for each Institute

SUNDAY

Our History as a Context for Our Future - Steve Eidelman

Steve Eidelman will present a brief, post WWII history of policy and practice for services and supports for people with intellectual and developmental disabilities. He will discuss changes in the filed in that time and some of the challenges leaders face as we go forward.

Steven M. Eidelman, MBA, MSW is the University of Delaware’s H. Rodney Sharp Professor of Human Services Policy and Leadership. He holds joint faculty appointments in the School of Urban Affairs and Public Policy and the Department of Individual and Family Studies. Mr. Eidelman is the former Executive Director of the Joseph P. Kennedy Jr. Foundation, leading the organization to implement innovative projects, programs and cutting-edge policies. Prior to his appointment with the University of Delaware, Mr. Eidelman was the Executive Director of The Arc of the United States, an advocacy group for people with cognitive disabilities and their families, which has more than 900 state and local chapters and 100,000 members. Mr. Eidelman also served as Deputy Secretary for Mental Retardation in the Pennsylvania Department of Public Welfare.

Extending our Reach, Rather than Rejoicing at our Grasp - Derrick Dufresne

2010 is not only the 20th anniversary of the ADA, but also the 60th anniversary of the community service system. Yes, sheltered workshops are 60 years old, group homes have been around for over 40 years. It is time to take a hard look at not how far we have come, but how far we have to go. We have moved form the segregation shackle to the disability bubble, but we are nowhere close the community circle. Most people with disabilities are in but not of the community. Loneliness is rampant, and we are not much closer to connecting people to their communities than we were 60 years ago.

In the midst of our focus on programs, size of agency, and number of people served, we need to perhaps ask if we are measuring the right things. This presentation will challenge participants to take a fresh look at what we can do to help people move from clienthood to citizenship.

Derrick F. Dufresne is the President of Community Resource Associates, a training and management consulting firm dedicated to promoting full community citizenship for people with disabilities. Derrick has worked in a variety of leadership positions since 1974. He is deeply committed to assisting providers, advocates, state officials and others in the implementation of the principles of full citizenship for all persons with disabilities into the mainstream of community life.

MONDAY

Person Centeredness & the People we Support - Michael Smull

Few people have given as much thought to what it means and what it takes to be person-centered as has Michael Smull. Michael helps us to think about ways to balance what’s important to people with what may be important for them and in response offer supports that are truly life-affirming.

Michael Smull is the Chair of The Learning Community for Person Centered Practices (TLC-PCP), and Director of Support Development Associates. Mr. Smull has been working with people with disabilities for the past 33 years, and has written and trained extensively in the provision of person-centered supports and self determination.

Exercise - Risk and Choice; Important To vs. Important For - Michael Smull and Nancy Weiss

Is it all about Choice? What is our responsibility when people choose risky or even life threatening behaviors? This exercise follows Smull’s session and helps participants to explore ways to understand and apply person-centered approaches.

Nancy R. Weiss, MSW has worked in the disabilities field for over thirty years. Prior to her affiliation with the University of Delaware, she was the Executive Director of TASH, an international advocacy association committed to full inclusion for people with disabilities. Ms. Weiss also served as an adjunct faculty member at Johns Hopkins University and was the Director of Community Services for the Kennedy Krieger Institute in Baltimore. Ms. Weiss is the former Executive Director of Community Systems, Inc., an agency providing progressive supports for adults with disabilities in Delaware. Ms. Weiss advocates for person-centered, ethical, and humane supports; she has written and spoken extensively on these topics.

Five Star Quality - Michael Mayer

Using a five point scale rating, similar to those used with a hotel or restaurant Mayer proposes as system for rating current services for individuals with disabilities. The vast majority of what passes for quality in our field would rate no more than a 2 or 3 star rating under this system. Mayer urges a quality of supports that surpasses government standards, and treats those with disabilities more as the citizens they are, rather than as dependents. Mayer asserts that billions of dollars have been spent on services that, for the most part, people don’t want. He describes current programs as poorly defined, poorly measured and as focusing mostly on compliance with regulations rather than quality.

Michael Mayer is a Senior Partner of Community Resource Alliance. He is an internationally known author, speaker, consultant, and trainer. Prior to joining CRA he was the Executive Director of the Institute on Complex Disabilities for 12 years specializing in crisis services and helping people transition from institutions. His humorous and dynamic approach has led to him working with over 500 organizations and training over 70,000 people worldwide.

The Will to Govern: Board Transformation - Renee Pietrangelo

Using the recent experience of the ANCOR Board over the past two years, Renee will share the process of how they began and continue the process of shifting Board culture to knowledge-based thinking and decision-making focused on generative thinking processes and dialogue that underpins strategic assessment and deliberation.

Renee Pietrangelo is CEO of the American Network of Community Options and Resources (ANCOR). Her contributions include the creation of the ANCOR Foundation, a nonprofit education and research organization, and a National Advocacy Campaign to address the critical issues of staffing shortages and inadequate reimbursement for the supports and services providers offer. Her contributions include the creation of the ANCOR Foundation, a nonprofit education and research organization, and a National Advocacy Campaign to address the critical issues of staffing shortages and inadequate reimbursement for the supports and services providers offer.

How Organizations Become Person-Centered - Michael Smull

The shift from providing services in congregate settings to providing individualized supports presents a myriad of challenges. Michael helps leaders to think about what organizational changes will be required to assure a true person-centered approach. He offers ways to measure the degree to which people’s lives are getting better and assess the impact of our work.

Michael Smull is the Chair of The Learning Community for Person Centered Practices (TLC-PCP), and Director of Support Development Associates. Mr. Smull has been working with people with disabilities for the past 33 years, and has written and trained extensively in the provision of person-centered supports and self determination.

TUESDAY

Tuesday sessions are devoted to getting to know yourself as a leader. A variety of self- assessment and experiential exercises are provided.

Elizabeth Vasquez has over 25 years experience as a management consultant for not-for-profit organizations, government agencies, and for profit companies in the US and internationally.

WEDNESDAY

Having Great Lives - Meaningful Daytime Activities and Income Generation for ALL! - Annette Downey, Ray Schuholz, David Taylor, John Toppi

This session will focus on success stories and how people with developmental disabilities are making great things happen in their lives by self-directing their supports through Person-Centered Planning and the use of individual budgets. Audience members will be encouraged to set high expectations and “think outside the box” when assisting people with disabilities in planning for their futures. Creative options for income generation will be explored, including the option of small business development. This session is highly focused on helping people achieve active, rich, and respected lives as valued members of their community.

“Getting great services” is obviously not the goal of self-directed support… “Getting a great life” is! Please join us for this very inspirational session that celebrates the freedom people with disabilities can achieve and enjoy in their communities.

The speakers for this session include Annette Downey, the Executive Director of Community Living Services of Oakland County, Michigan and a number of people who have chosen to receive support from that agency.

Funding, Demographics, and How States Work - Nancy Thaler

Nancy is the CEO of the national organization of State Developmental Disability Directors. She will discuss ways the landscape is changing for providers - major demographic shifts and shifts in funding and approaches will affect us all. In addition, she discusses how states work and the best ways to advocate for change within state systems.

Nancy Thaler Served as Pennsylvania’s Deputy Secretary for Mental Retardation and is currently the CEO of The National Association of State Director of Developmental Disabilities Services (NASDDDS).

Becoming Person-Centered - Patti Scott

Providing supports that lead to full lives for people involves an intentional focus for organizations. Key components of successfully providing these types of supports are the unpaid people and allies that are developed around the person with a disability; the control and authority over their life; funding and supports that are entrusted to the person and their circle; in depth personalized planning and individualized supports; and the partnership between the Provider and the person. This session will explore the journey of Neighbours, Inc, an organization providing individualized, self-directed services in NJ and Pennsylvania. It will discuss what the people of Neighbours, Inc have learned, the tools and approaches that have made it possible for the past 13 years, and how partnerships have been formed with people to create full lives, rich in relationships and community.

Patti Scott co-founded Neighbours, Inc. in 1995. Neighbours, Inc. is an innovative agency that affords people with disabilities the opportunity to take control of their own lives; to be self-directing. Patti believes that these individualized supports are essential to lay the foundation for a meaningful life as a citizen, neighbor, and community member. She is currently Chief Executive Officer of Neighbours, which is supporting individuals and families throughout NJ and southeastern Pennsylvania.

THURSDAY

Supporting People to Lead Lives They Choose - Lynne Seagle

In this session you will learn about Hope House Foundation and the specific steps it took to create an agency that serves people in a way that promotes full participation in community life. From closing of group homes, to meaningful community involvement this session will cover the nuts and bolts of how one organization in the State of Virginia took the necessary steps to match talk with reality. Participants will also be exposed to the understanding that most of the barriers people with disabilities deal with are arbitrarily established by those who seek to support them and how current management practices within not for profits must change in order to eliminate this issue.

Lynne Seagle leads Hope House Foundation an organization that supports people with disabilities in their own homes. She is experienced in fundraising, community development and partnership. Ms. Seagle provides consultation and training on progressive service delivery and participatory management throughout the United States and internationally.

Evaluation: Are we all tired of data yet? - Chris Smith

This presentation will focus on some of the traditional ways in which evaluation and data can make us feel helpless, confused, or how it can contribute to celebration of success. The presenter will offer (hopefully) insights regarding how evaluation data of all kinds can help organizations to know their constituencies, their services and supports, and their achievements in more comprehensive and integrated ways. In addition, the presentation will offer ways to re-think current outcomes-oriented evaluation, moving toward a more-comprehensive organizational and community perspective. The focus of this re-thinking of the evaluation process is to help move organizations and systems to a place where evaluation data of all kinds can be used to reflect on how to achieve radical change (and measure the ongoing impact of our work). Activities will help participants to reflect on how they, and their current organizations, use data and how those strategies can be improved in the future.

Christopher Smith, Ph.D., serves as the Director of the Maryland Center for Developmental Disabilities at Kennedy Krieger Institute, which is the State of Maryland’s official University Center for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD). Prior to joining Kennedy Krieger, Dr. Smith served as the Founder and Director of the Center on Quality in Human Services, at the University of Kansas Center on Developmental Disabilities. Dr. Smith, who is himself a graduate of the University of Delaware National Leadership Institute, became interested in integrated outcomes as he worked with communities and agencies that struggled to know if their services were having an impact. His work with communities and agencies is designed to help them articulate their vision of their services, who benefits, how the agency or community might achieve its desired outcomes, and what needs to be done to ensure success.

The Power of Participatory Management - Lynne Seagle

The agencies that support people with disabilities are often committed to assuring that the people who receive support are offered lives that value and empower them but how many agencies offer the same to their employees? It is clear that staff can’t give what they don’t get. Hope House has developed methods to flatten their organizational structure, empower self-led teams and assure that employees at all levels are provided the information needed and the opportunities to participate in decision-making. Principals of participatory management, creative staff development approaches and how to conduct fundraising within communities will be covered in detail.

Lynne Seagle leads Hope House Foundation an organization that supports people with disabilities in their own homes. She is experienced in fundraising, community development and partnership. Ms. Seagle provides consultation and training on progressive service delivery and participatory management throughout the United States and internationally.

What Self Advocates Wish Professionals Better Understood - Liz Weintraub

Often the people who receive supports are our best teachers. Liz will discuss things that self advocates wish the people and agencies who provide services better understood.

Liz Weintraub works for the Council on Quality & Leadership (CQL) and consults for National Children’s Center in Washington, D.C. Her work with both of these organizations focuses on improving quality of life for people with disabilities. Liz is also the chair of the Maryland Developmental Disabilities Council.

Return to Week-Long Institute.

To learn more about the Leadership Institute, e-mail Nancy Weiss at nweiss@udel.edu or call at 302-831-8535.